Fibromyalgia

All posts tagged Fibromyalgia

The Body Thief continues…

Published August 25, 2014 by S. E. Myers

Writing is hard… And, finding the time to write is even more difficult.  Between a full-time job at work, a full-time job at home (including church responsibilties), back to school nights, homework, cooking, husband time and household chores – where is the time?

I haven’t included my hobbies either: WoW, Diablo III, crochet, Doctor Who (oh yes, it is a hobby), crafting, etc…

I have the whole outline for this book. I am really excited about it and I can’t wait to see where my characters take me. But I need more time!! I still have to finish Dark Inhibition. Poor Ryleigh is having a heck of a time right now. The darkness keeps pushing into her and she is becoming less resistant to its summons. <insert sad face>

I am hoping with my new shift that starts, I will have more time to do what I need. If not, it will go in my calendar. I have to make the time. I think this is one of the most important lessons that I have learned. I am scheduling everything in my physical and electronic calendars so I don’t miss anything. I have to now translate it all to the wall calendar for the kids so they know what is going on.

Being an involved parent/mother/wife/friend/sister is challenging. I often wish I was a stay-at-home-mom again but I think I would tire of that eventually. 

Above all else, although at the end of the day I collapse into bed exhausted, I enjoy my life and I am truly the happiest I have been in. 

Organization is tough and it is tough to stay organized. If I don’t write it down, it won’t get done or it will get forgotten (thanks, fibromyalgia!)

 

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On Fibromyalgia

Published July 28, 2012 by S. E. Myers

Fibromyalgia.

I loathe it.  I detest it.  I try to pretend I don’t have it but it is there.  On days when I don’t want it to, it rears its ugly head, makes its presence known, and wants to control my mind and my body.  I fight it.  Hard.

It kind of ticks me off when I see people use it as an excuse.  Scratch that.  It REALLY ticks me off when someone uses it as an excuse.  I see these people with their fake fibromyalgia.  How do I know it’s fake?  Because they only have it when it is convenient.  Let me tell you, it is not flipping convenient.  It is the most inconvenient, sometimes debilitating, infuriating, exhausting, disorder.

Yes, it is a disorder because it is not a disease.  It is a miscommunication between the pain receptors and neurons in my brain.  Maybe they need a mediator.

There is no cure.  This is the best website I found to describe the condition.

Fibromyalgia is so much more than just pain.  I can’t stand when I hear or read of someone constantly complaining about one part of their body hurting or other conditions and attaches a Fibromyalgia stigma.  “Um, excuse me?” (tap, tap, tap the shoulder) “Fibromyalgia doesn’t just stay in one spot in your body, have you been diagnosed?  Or have you been self-diagnosed?”

It took 10-years to diagnose me with this condition.  Several doctors, blood tests, physical therapy, medication… I was looked at like some crack seeking addict.  It was humiliating.  I found the most amazing doctor.  He referred me to a rheumatologist, who tested my blood for other anomalies, and then finally diagnosed me with Fibromyalgia.

Now, there are so many things that tie in with this disorder:  dry mouth, dry eye, irritable bowel syndrome, insomnia, sleep disorders, CFS (Chronic Fatigue Syndrome), tension headaches, migraines, RLS (Restless Leg Syndrome), Joint Pain, inflammation, tender points…

Like I said, it sucks.  I have a pretty high pain tolerance.  Which I guess is good having fibro and all, but at the same time, when I am in pain — I am down for the count.  One of the tender points I have resonates from my clavicle through my arm.  That makes it difficult to perform a majority of tasks.  I fight through it.  (I almost wrote threw — sometimes I do feel like throwing things).

If you suspect you have it, see a doctor.  Don’t just assume you have it.   I’ve noticed it becomes an every day excuse and makes life for those of us that do have it, much more difficult.  If you want pain pills just to have pain pills and use Fibromyalgia as an excuse  — go to rehab.  You make it difficult for those of us that do have the condition to get appropriate help without being looked at as a hopped up drug seeking crack whore (pardon my french).

I take three types of medication and multiple vitamins. I stretch, meditate, breathe, and try to get my body moving every waking moment.  I function the best I can to live my life.